Justin C.
39 years old
Severe Hemophilia A
Frequent Traveler
3x/week prophylaxis with KOVALTRY®
Justin C.
39 years old
Severe Hemophilia A
Frequent Traveler
3x/week prophylaxis with KOVALTRY®
Justin C.
39 years old
Severe Hemophilia A
Frequent Traveler
3x/week prophylaxis with KOVALTRY®
Meet Justin C.
Meet Justin C.
me as a kid
with my brother
Growing up
My mom knew that she was a carrier before I was born. They tested me when I was 6 months old and found out I have severe hemophilia A. My younger brother also has severe hemophilia A, and growing up we went to the blood bank for 5 to 7 years to get blood. Our family, including our aunts and uncles, would actually go and donate blood for us.
Growing up
My mom knew that she was a carrier before I was born. They tested me when I was 6 months old and found out I have severe hemophilia A. My younger brother also has severe hemophilia A, and growing up we went to the blood bank for 5 to 7 years to get blood. Our family, including our aunts and uncles, would actually go and donate blood for us.
my wife and me
Today
I'm 39 years old, and I've been married for 12 years. I have 3 kids, all under the age of 8. When I met my wife, she was in nursing school, so I was lucky since she knew what hemophilia A was. My daughter is a carrier and has symptoms of hemophilia.
I've enjoyed the hemophilia camps, the community. It's so small, it's really like family. I was a camp counselor and I know kids who have now graduated. They were first-year campers and I'm seeing them graduate college now, which is a good feeling.
I think it's easier to stay connected now than when we were younger, because there's social media and all these other things that you can use to stay in touch. I can tell you that if I had a major problem today, I could still call my HTC from when I was a child and be like, "Hey, here's what I'm dealing with." I could talk to the same nurse, talk to the same physician's assistant, talk to the same doctor, even.
After college, I went to on demand for a while. Then, about 8 years ago, I went back to prophylaxis. This year, I started on KOVALTRY®, prophy, 3 times a week, and it's a good fit for me.
Today
I'm 39 years old, and I've been married for 12 years. I have 3 kids, all under the age of 8. When I met my wife, she was in nursing school, so I was lucky since she knew what hemophilia A was. My daughter is a carrier and has symptoms of hemophilia.
I've enjoyed the hemophilia camps, the community. It's so small, it's really like family. I was a camp counselor and I know kids who have now graduated. They were first-year campers and I'm seeing them graduate college now, which is a good feeling.
I think it's easier to stay connected now than when we were younger, because there's social media and all these other things that you can use to stay in touch. I can tell you that if I had a major problem today, I could still call my HTC from when I was a child and be like, "Hey, here's what I'm dealing with." I could talk to the same nurse, talk to the same physician's assistant, talk to the same doctor, even.
After college, I went to on demand for a while. Then, about 8 years ago, I went back to prophylaxis. This year, I started on KOVALTRY®, prophy, 3 times a week, and it's a good fit for me.
When I started on KOVALTRY®, I took a lot into consideration, including that I shouldn't use KOVALTRY® if I was allergic to rodents, like mice and hamsters, or any ingredients in KOVALTRY®( see additional safety information below).
" I've enjoyed the Hemophilia camps, the community.
Its so small, its really like Family."
" I've enjoyed the Hemophilia camps, the community.
Its so small, its really like Family. "
my children
Looking forward
I have family members with bleeding disorders, and they're much more aware and involved than I was at their age. They're not afraid to talk about it. They go to summer camp. They're connected to people and doing so many things I never did. It's great.
We were at family camp. The kids were walking in front of us and my son says to my daughter, "You have hemophilia. I wish I had it too." Now for my son to say that, just because of how fun camp is, it's funny hearing that. I said, "Do you really want to get stuck by a needle? Do you really want to do this?" He's like, "Oh yeah, I forgot about that." Caught up in all the fun stuff, that's great, but there's the needles and everything else. "Oh yeah, no, I'm good." But I think it says a lot about where we are now with awareness of hemophilia A.
Meet Justin C.
Meet Justin C.
me as a kid
with my brother
Growing up
My mom knew that she was a carrier before I was born. They tested me when I was 6 months old and found out I have severe hemophilia A. My younger brother also has severe hemophilia A, and growing up we went to the blood bank for 5 to 7 years to get blood. Our family, including our aunts and uncles, would actually go and donate blood for us.
Growing up
My mom knew that she was a carrier before I was born. They tested me when I was 6 months old and found out I have severe hemophilia A. My younger brother also has severe hemophilia A, and growing up we went to the blood bank for 5 to 7 years to get blood. Our family, including our aunts and uncles, would actually go and donate blood for us.
my wife and me
Today
I'm 39 years old, and I've been married for 12 years. I have 3 kids, all under the age of 8. When I met my wife, she was in nursing school, so I was lucky since she knew what hemophilia A was. My daughter is a carrier and has symptoms of hemophilia.
I've enjoyed the hemophilia camps, the community. It's so small, it's really like family. I was a camp counselor and I know kids who have now graduated. They were first-year campers and I'm seeing them graduate college now, which is a good feeling.
I think it's easier to stay connected now than when we were younger, because there's social media and all these other things that you can use to stay in touch. I can tell you that if I had a major problem today, I could still call my HTC from when I was a child and be like, "Hey, here's what I'm dealing with." I could talk to the same nurse, talk to the same physician's assistant, talk to the same doctor, even.
After college, I went to on demand for a while. Then, about 8 years ago, I went back to prophylaxis. This year, I started on KOVALTRY®, prophy, 3 times a week, and it's a good fit for me.
Today
I'm 39 years old, and I've been married for 12 years. I have 3 kids, all under the age of 8. When I met my wife, she was in nursing school, so I was lucky since she knew what hemophilia A was. My daughter is a carrier and has symptoms of hemophilia.
I've enjoyed the hemophilia camps, the community. It's so small, it's really like family. I was a camp counselor and I know kids who have now graduated. They were first-year campers and I'm seeing them graduate college now, which is a good feeling.
I think it's easier to stay connected now than when we were younger, because there's social media and all these other things that you can use to stay in touch. I can tell you that if I had a major problem today, I could still call my HTC from when I was a child and be like, "Hey, here's what I'm dealing with." I could talk to the same nurse, talk to the same physician's assistant, talk to the same doctor, even.
After college, I went to on demand for a while. Then, about 8 years ago, I went back to prophylaxis. This year, I started on KOVALTRY®, prophy, 3 times a week, and it's a good fit for me.
When I started on KOVALTRY®, I took a lot into consideration, including that I shouldn't use KOVALTRY® if I was allergic to rodents, like mice and hamsters, or any ingredients in KOVALTRY®( see additional safety information below).
" I've enjoyed the Hemophilia camps, the community.
Its so small, its really like Family "
" I've enjoyed the Hemophilia camps, the community.
Its so small, its really like Family "
my children
Looking forward
I have family members with bleeding disorders, and they're much more aware and involved than I was at their age. They're not afraid to talk about it. They go to summer camp. They're connected to people and doing so many things I never did. It's great.
We were at family camp. The kids were walking in front of us and my son says to my daughter, "You have hemophilia. I wish I had it too." Now for my son to say that, just because of how fun camp is, it's funny hearing that. I said, "Do you really want to get stuck by a needle? Do you really want to do this?" He's like, "Oh yeah, I forgot about that." Caught up in all the fun stuff, that's great, but there's the needles and everything else. "Oh yeah, no, I'm good." But I think it says a lot about where we are now with awareness of hemophilia A.
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Join the Conversation!
Want to share your patient or caregiver story?
Let us know if you would like to be contacted—your experiences could be featured in KOVALTRY® Conversations.
INDICATION FOR KOVALTRY®
KOVALTRY® is a medicine used to replace clotting factor (Factor VIII or antihemophilic factor) that is missing in people with hemophilia A.
KOVALTRY is used to treat and control bleeding in adults and children with hemophilia A. KOVALTRY can reduce the number of bleeding episodes in adults and children with hemophilia A when used regularly (prophylaxis). Your healthcare provider may give you KOVALTRY when you have surgery.
KOVALTRY is not used to treat von Willebrand Disease.
IMPORTANT SAFETY INFORMATION
You should not use KOVALTRY if you are allergic to rodents (like mice and hamsters) or any ingredients in KOVALTRY.
Tell your healthcare provider if you have heart disease or are at risk for heart disease.
The common side effects of KOVALTRY are fever, headache, and rash, in addition to inhibitors in patients who were not previously treated or minimally treated with Factor VIII products.
Your body may make antibodies, called “inhibitors” against KOVALTRY, which may stop KOVALTRY from working properly. If your bleeding is not adequately controlled, it could be due to the development of Factor VIII inhibitors. Consult with your healthcare provider to make sure you are carefully monitored with blood tests for the development of inhibitors to Factor VIII.
Allergic reactions may occur with KOVALTRY. Call your healthcare provider right away and stop treatment if you get tightness of the chest or throat, dizziness, decrease in blood pressure, and nausea.
Tell your healthcare provider about any side effect that bothers you or that does not go away.
Call your healthcare provider right away if bleeding is not controlled after using KOVALTRY.
For additional important risk and use information, please see full Prescribing Information.
